S1E4: Cassie Johnston with Alstrom Angels

Cassie Johnston sits down with Katherine White to share her family’s story with Alstrom Syndrome and how they used their situation to start a non-profit to raise awareness for the rare disease. With her daughter Bryce being diagnosed with Alstrom Disease at three years old, Cassie and her family started fundraising to donate to research for the disease. As the organization grew into the non-profit it is today, the Johnston’s give credit for the successes to the community support. She says they wouldn’t be able to help as many children with the disease without the resources found in Lubbock, Texas.